Saturday, 21 November 2015

IBS and Sleep!



Where have you been I hear you ask lol. As the title says for the past few weeks I have either been stuck on the loo or asleep! Winter really hates me.

Today I have finally had a shower and feel a bit more human but still so sore and fatigued. I really can't comprehend having to deal with this without the help of my Husband. He is now what I was essentially and I am a Zombie lol.

I wonder if it is the same for everyone? Have you seen yourself decline over the years or have you stayed the same? Having a shower these days is like contemplating scaling Everest.

The worst thing of it all is in my mind I can do anything, and there is so much I want to do, but then the confusion, fatigue or pain kicks in and nothing gets done like always. It's soul destroying and often I think what is the point of me!

My hair is falling out in handfuls daily, I can now wrap my bobble round four times! Plus I am losing weight (which I am not complaining about lol) so looked it up and I am depressed apparently.........no shit Sherlock!

Oh well there is always next week. I may be clear enough to read a bit more on photography before I hear Charlie Brown's teacher in my head lol.
Hope you are all as well as can be and I will be more upbeat next time I hope.

Thanks for reading 
if you did :0)
xxxJoolsxxx



Friday, 3 July 2015

What's bloody next?!?!?



As I am sat here typing my legs and arms are going numb. I have been searching the Internet for a bit and it looks like it is Peripheral Neuropathy!!!

I have felt like crap for a while and asked hubby to get me some blood glucose test strips the other day.  I used to get them from the GP after I wrote a long letter explaining the only way I could keep my diabetes under control was to test. Then all of a sudden the receptionist refused to add them to my prescription when hubby phoned for my meds!!

Just before they stopped me getting the strips they changed me from Metformin to Gliclazide as I had some sort of allergic reaction to the Metformin (bit like the Amytriptiline before it!!) and I am convinced it has never worked. So hubby goes to buy them and has to have a stand up argument with the pharmacist who says Oh no she can't have those only Type 1 diabetics need to test!

Anyhoo he stood his ground and got them at a cost of £24 and glad he did as my numbers were waaaaaaay off. Now how would I know and try and do something about it without the strips?? So I have been no carbing as much as I can for days and my numbers are still sky high (hence why I think the meds are not working) and the fact that I have the numb arms and legs would appear to confirm they never have!

So according to all the sites I am stuck with this now as it is not reversible I just want to cry. Why Me?????????? I am sick to death of being bloody sick and I DO NOT need another bloody thing to add to the list. Just want to crawl under the duvet and never come out.

Saturday, 20 June 2015

Think I am out the other side..............fingers crossed





Well here we are another week on and I still have IBS from hell, but on the bright side it is getting easier to cope with. Don't tell anyone but I think I may be coming to the end, because I mean how much more can there be lol??

So in between sleeping, not sleeping and trips to the loo I haven't really been doing too much. I did however find the funniest Fibro blog post I have ever read. When I am over tired I giggle at anything and I found this when I was 24 hours sleep deprived so I thought I was going to pee myself (nearly did if the trugh be told!)

So as there is no news this end I thought I would share it to give you all a good laugh. There is so much misery surrounding fibro it's nice to see the funny side and have a really good laugh so go HERE now and have a good belly laugh.

Thanks for reading (if you did)
Till next time
Hugs :0)
xxxJoolsxxx

Friday, 5 June 2015

Weaning off the meds.............



Hi all remember when I wrote this.

Well I sat down and decided I was going to wean myself off the 75mg of Amytriptiline a day I was on.

I was very wary to be honest as I have been on them years and had an allergic reaction years ago and had to stop them. I was in agony and thought I would crack up with the pain. I was even given (after a huge argument with the GP who didn't want to listen to the specialist at the hospital) morphine patches and they did nothing! I thought I would go mad untill a new GP said try them again and see how you go and I was fine weird huh?

So when I decided I wanted to come off them I was dreading the pain coming back and hitting me round the back of the head.

Well here I am nearly off them, I am on 1 every other night till Sunday then it will be none!!! To be honest I feel OK. Apart from extra fatigue and pain it is OK. I can manage this with my painkillers and hot water bottle. I am assuming it will get worse but maybe it wont?!?

I am praying I can cope without the meds as the alternative is scary and I would rather be in pain than lost altogether.

Have any of you tried to come off meds and how did it go?

Thanks so much for reading (if you did)
Hugs :0) 
xxxJoolsxxx

Sunday, 24 May 2015

Fibromyalgia and Menopause



I will be 50 in December and I think I may be perimenopausal. 

I am all over the place with my monthlies and my head. 

What I didn't know was a lot of Fibromyalgia symptoms are the same as the symptoms of the Menopause hey who knew!

So recently I started to wean myself off my Amytriptiline as I was really scared of the onset of dementia. I did a post here.

What must of been happening was the doubling up of symptoms..........well I hope so anyway. I am now down to 1 tablet from 3 with the meds and I must say I feel a lot sharper than before. I even did the countdown numbers quicker than the contestants and had a few 7 letter words unheard of in recent months!

I was looking for relief of the menopause symptoms when I came across the ladycare magnet thing here.
They had this list :-

24 menopause symptoms

LadyCare has been shown to help relieve the following 24 symptoms of menopause:
  • Hot flushes
  • Heart palpitations (feeling your heart racing)
  • Irritability
  • Mood swings
  • Sudden tears
  • Loss of libido, sex drive
  • Anxiety
  • Fatigue
  • Feelings of doom and dread
  • Vaginal dryness
  • Painful intercourse
  • Inability to concentrate
  • Trouble sleeping
  • Urinary incontinence upon sneezing or laughing
  • Itchy, crawly skin
  • Sudden weight gain
  • Hair loss
  • Stomach problems: indigestion and gas
  • Painful and sore muscles, tendons and joints
  • Breast soreness, tenderness
  • Irregular vaginal bleeding
  • Disturbing lapses of memory
  • Increased muscle tension
  • Bladder infections
As you can see there are a lot that cross over so perhaps they were just making bad things worse. I will continue to wean myself off the meds and see how I go memory wise and I may even give the magnet a try for the rest.

Anyone else been through or going through this notice the same?

Thanks for reading (If you did):0)
Hugs
 xxxJoolsx

Friday, 20 March 2015

Telephone Difficulties with Fibromyalgia and Chronic Fatigue Syndrome



For ages I have battled with companies and mostly with the Doctor's receptionist about the phone.

I have been polite and explained my situation quite clearly but still they want to push me over the edge by constantly badgering me to talk on the phone. I explain I am disabled and "do not use the phone" please Email me but no they keep at me.

I have felt like saying to them if I was blind would you insist I see something?!?

In this day and age how difficult is it for companies/banks/doctors to email?

Why do I not use the phone? Because Fibromyalgia has robbed me of my memory, my attention span, my ability to answer a question immediately and oh so many other things. Talking on the phone scares me now if I am honest, as someone is always trying to trip you up or scam you and I don't know my own name most days.

I love the computer purely because I can take my time, spell check, re read to see if it makes sense etc. Plus the las time I tried talking in the phone my arm went into spasms and was excruciatingly sore for days.

At last I have finally seen I am not alone and intend to print THIS out for the Doc's receptionist and anyone else who insists I have to talk on the phone.

Do you have the same problem? If so how do you deal with it?

Thanks for reading
(if you did)
:0) xxxJoolsxxx

Friday, 6 February 2015

Dementia?!?



As most of you already know one of the symptoms of Fibromyalgia is BrainFog. This is described as being confused and muddled etc. As the years have gone on I have had increased brainfog to the point of complete confusion.

I have said for years now that I was worried it wasn't brainfog at all and was early onset dementia or Alzheimers. I get so confused at times and stop mid sentence totally blank with no idea what I was just saying. I ask the same thing over and over and totally forget I have, and to be honest it scares me.

A couple of nights back my fear was compounded by a news story on Sky News. They said that people taking certain over the counter medications and some anti depressants including Amytriptiline (which I have been taking for 12 years!) were at greater risk of developing Dementia!!

They said to take them in a low dosage for a short time! Hmmmm mine have been 75mg for 12 years hardly low or short. I want to go and see the GP to ask to be swapped to something else but I have tried most things already and non of them worked. So looks like I am stuck between a rock  and a hard place, go mad or go mad with pain!!

Did you see the report and what did you think?
Here is a link incase you missed it.

Thanks for reading (if you did)
Hugs
:0) xxxJoolsxxx