tag:blogger.com,1999:blog-7381393580008309019.comments2023-01-22T00:53:16.482+00:00Fibromyalgia DailyJoolsVoiceOverhttp://www.blogger.com/profile/11329983698110375158noreply@blogger.comBlogger163125tag:blogger.com,1999:blog-7381393580008309019.post-86027466812723055492023-01-22T00:53:16.482+00:002023-01-22T00:53:16.482+00:00Isn't it just and I love her voice too. Thanks...Isn't it just and I love her voice too. Thanks so much for taking the time to comment :0) xJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-25999878285082326132023-01-22T00:37:28.597+00:002023-01-22T00:37:28.597+00:00Beautiful song Beautiful song Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-43342531278965967032022-12-16T07:02:49.725+00:002022-12-16T07:02:49.725+00:00Thanks for joining in at the fibromyalgia link-up ...Thanks for joining in at the fibromyalgia link-up this weekGoodhttps://www.blogger.com/profile/12327466039696984294noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-84016329830462931682020-01-14T23:47:34.144+00:002020-01-14T23:47:34.144+00:00I’m sorry I didn’t understand that but thanks for ...I’m sorry I didn’t understand that but thanks for taking the time to read and comment :0) xxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-57768984556613364392020-01-14T23:26:20.205+00:002020-01-14T23:26:20.205+00:00In contrast the healthy control subject's resp... In contrast the healthy control subject's response to this low intensity pressure involved mainly somatosensory (touch, not pain brain response) cortices <a href="https://www.nourishdoc.com/TreatmentPlans/How-To-Manage-Fibro-Fog-Or-Chronic-Fatigue-brain-fog-fibromyalgia" rel="nofollow">fatigue treatment</a><br />Gerardoavery cristianhttps://www.blogger.com/profile/14670804017245162639noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-45481568163002492742020-01-03T13:36:25.857+00:002020-01-03T13:36:25.857+00:00Thanks so much for taking the time to read and lea...Thanks so much for taking the time to read and leave a comment I truly appreciate it :0) xxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-89458228603977017962020-01-02T05:20:52.969+00:002020-01-02T05:20:52.969+00:00Thanks for sharing. I thought it was just me think...Thanks for sharing. I thought it was just me thinking how different my life was before fibromyalgia Anonymoushttps://www.blogger.com/profile/01869335217158431046noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-91931215806160213352019-12-11T01:04:10.446+00:002019-12-11T01:04:10.446+00:00Hard to respond like this when people are calling ...Hard to respond like this when people are calling you retards or benefit scrounging scum, or a liar, that it’s all in your head and you should just go away and die! Thanks so much for reading and commenting I appreciate it :0) xxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-87212192720795426292019-12-11T00:52:03.895+00:002019-12-11T00:52:03.895+00:00We all have a set of mental filters that we have g...We all have a set of mental filters that we have gathered over the years that are more unique to each us than our finger prints. People can only relate to what their filters allow them to understand, we all delete, distort and generalize information that we can't relate too and tend to either internally judge (self talk) or externally judge others and the way they live their lives based on our understanding of life.<br />What i have come to realise is that most people with Chronic Illness don't really understand why they suffer from what they have or how they can help themselves, and often judge themselves as being No good, Broken, Hopeless or Worthless, that is why being judged by others (which is not right and not helpful by the way) is so hurtful, it solidifies what they are saying to themselves!<br /><br />A good way to educate people is to wear the I hat, never the you hat, a statement in reply to assumptions could be something like "Name, I feel really hurt when i hear others say i that am not trying the hardest i can with the illness i have, i'm finding things really hard at the moment and trying the best i can with the health i currently have"<br />Very hard for anyone to argue with this, this includes judgments of yourself too. David Marcerhttps://www.blogger.com/profile/05519106739590455819noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-65858306003219604682019-12-09T08:52:56.529+00:002019-12-09T08:52:56.529+00:00Thank you for your comment :0) xxThank you for your comment :0) xxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-14964433175890046272019-12-08T16:36:53.749+00:002019-12-08T16:36:53.749+00:00Easily this page will probably irrefutably possibl...Easily this page will probably irrefutably possibly be well known involving many blogs persons, to its diligent articles or blog posts or maybe opinions. <a href="https://livreavis.com/revue-complete-de-destructeur-diabete/" rel="nofollow">site officiel du produit</a>seo pormotionhttps://www.blogger.com/profile/00987115700887642371noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-62967191680888068782019-12-06T21:33:35.878+00:002019-12-06T21:33:35.878+00:00Oh I wish I could see that. Thanks so much for rea...Oh I wish I could see that. Thanks so much for reading and taking the time to comment I truly appreciate it :0) xxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-25808577201993237022019-12-06T21:21:28.494+00:002019-12-06T21:21:28.494+00:00This illness takes so much from us, but if I look ...This illness takes so much from us, but if I look hard enough I can see where it's given me things, too. Happy holidays to you! Fed Up with Fatiguehttps://www.blogger.com/profile/18370491865503300897noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-42915424599165015442019-11-21T18:51:22.619+00:002019-11-21T18:51:22.619+00:00No sadly still the same. Living in hope we get Jer...No sadly still the same. Living in hope we get Jeremy Corbyn as our new Prime Minister and things change for the disabled. Thanks so much for taking the time to read and comment, gentle hugs to you ;0) xxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-48635738230625842262019-11-20T18:41:40.821+00:002019-11-20T18:41:40.821+00:00I´m sorry to read that, unbelievable. I saw it was...I´m sorry to read that, unbelievable. I saw it was posted in July, are there any updates? Hopefully positive?<br />Gently hugs from one #FibroFighter to another. <3Tinahttps://bettinabier.com/noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-22268764370452126942019-11-15T19:40:46.560+00:002019-11-15T19:40:46.560+00:00Hope you are as well as can be hon and sorry for b...Hope you are as well as can be hon and sorry for being MIA xxxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-23288808894265794682019-11-15T19:28:43.856+00:002019-11-15T19:28:43.856+00:00I hear you, sisterI hear you, sisterGoodhttps://www.blogger.com/profile/12327466039696984294noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-37580173062215490832019-05-26T03:55:57.080+01:002019-05-26T03:55:57.080+01:00Bless you honey. As an update I’ve lost my money t...Bless you honey. As an update I’ve lost my money too, just waiting to hear about my daughter. The assessors are lying about everyone and kicking people off left right and centre. People are starving and committing suicide all over the U.K. its a really scary time. XxxxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-82137585007914972162019-05-26T00:15:54.536+01:002019-05-26T00:15:54.536+01:00Dear Jools, it saddens me to hear all that you hav...Dear Jools, it saddens me to hear all that you have been through and all you are going through - you and your family. The system seems so unfair where you are. When Australia was implementing their new disability scheme there were warnings in the paper saying that we did not want to end up with a system like the UK "middle level of bureaucratic case managers -- placing more reliance on the opinions of the client, carer or family. Funding should be flexible to cater for one-off needs, and reviews should be catered to individuals rather than be time-specific." https://www.theaustralian.com.au/news/health-science/disability-plan-must-avoid-uk-mistakes/news-story/070ac8d1a955ccbd435b7c647e93500f <br />I am so sad that you, my friend, are trapped in this mess. Goodhttps://www.blogger.com/profile/12327466039696984294noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-7607703611978150532019-05-03T11:58:00.703+01:002019-05-03T11:58:00.703+01:00I felt I had to do this post for those who look at...I felt I had to do this post for those who look at us and make assumptions about who we are. As you say which is worse having and losing or never having to begin with? Thanks so much for taking the time to read and comment :0) xxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-83941746224502678762019-05-03T09:44:00.373+01:002019-05-03T09:44:00.373+01:00I've had pain since I was 10 and fell with my ...I've had pain since I was 10 and fell with my bike. <br />I recognize some things you say, but I don't have the feeling I lost so much, because I never had it. <br />Maybe that's good for me? <br /><br />ON the other hand: yeah, I also lost a lot of myself. Cannot imagine how I lived when the kids were little. The things I did! And kept doing! <br /><br />Sometimes is difficult, to get a reminder like that. Riahttps://www.blogger.com/profile/18376372646119812268noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-84472654775581299392019-04-08T15:35:24.359+01:002019-04-08T15:35:24.359+01:00The thing is there is so much more that I just can...The thing is there is so much more that I just can’t remember. It’s hard for sure. Thanks so much for taking the time to read and comment :0) xxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-56888729899653737782019-04-07T23:52:29.401+01:002019-04-07T23:52:29.401+01:00That whole 'before fibro' retrospective ca...That whole 'before fibro' retrospective can be so jarring, so painful. Thank you for honestly sharing this, it's not easy to go back over the person you were and the life you had, seeing how different things are with your 'new normal'. xxInvisiblyMehttps://www.blogger.com/profile/01905149852062297978noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-72410852098728289082019-04-05T23:01:07.511+01:002019-04-05T23:01:07.511+01:00It's like we hit a brick wall and life as we k...It's like we hit a brick wall and life as we know it ends! Thanks so much for being so patient with me. Am still up to my ears in paperwork but trying to do other things too so I don't go mad :0) xxxJoolsVoiceOverhttps://www.blogger.com/profile/11329983698110375158noreply@blogger.comtag:blogger.com,1999:blog-7381393580008309019.post-2572455103863649842019-04-05T22:31:49.130+01:002019-04-05T22:31:49.130+01:00Very moving! This explains what we go through when...Very moving! This explains what we go through when fibro hits, so well and it makes me sad. Goodhttps://www.blogger.com/profile/12327466039696984294noreply@blogger.com