My life with Fibromyalgia
I have reached the limit of things I can write about.
As this illness has progressed my brain fog has worsened and I have problems thinking of topics.
Leave your questions below and I will endeavour to answer them.
I was diagnosed in 2003 but had it much longer so I guess I have gone through all the stages.
Looking forward to hearing from you all :0) xx
One thing about having Fibromyalgia is getting things done, or not as the case may be.
Things get overlooked or forgotten and then before you know it an age has passed and nothing has progressed.
I along with being bedroom bound have two Autistic children and an Autistic husband.
Back in the days when I was well I did everything and now staying awake is a task.
So today I tried to find some sort of walk in clinic that deals with women's health. I need to get my daughter to see a female as she (and all of us) does not like our GP.
Wow you would think I had asked to join the Masons. I joke when people ask where do you live and say the 1800's!
Today is yet another example of that.
We asked the GP's surgery if they ever have a female Locum....NO.
Is there a walk in women's health clinic....NO.
Could she see the practise nurse instead....NO.
Googled it and a clinic we went to when the children were little to get their Autism diagnosis popped up so I sent an email.
They wrote straight back and asked who was she "under" for her Autism.....ummmm no one.
Like most things in this country you are diagnosed and left to get on with things.
Then they asked for her name, DOB, address etc and I thought Yay they are going to help.....NO.
They said she HAS to see her GP for a referral to the hospital, well that isn't going to happen so now what?
I'm worried if things are left unaddressed further down the road it may be a problem.
Also I am worried I will leave it for a few days and then forget altogether and as my husband relies on me to do all the online organising "stuff" it will never be sorted.
I remember when I lived in London I could just walk into a clinic and be seen, now it is a nightmare even getting a GP who gives a shit about his patients.
Oh how I want to move!
Feeling really blah today.
Trying to get YouTube stuff done and all the videos I saved to react to will not play.
I put them up on Bitchute for safekeeping and should have just kept them on my laptop but there was no room.
I hate days like today when I am semi normal and capapble of getting stuff done and the computer gods are against me.
Other people would just say sod it and do something else but there isn't anything else I can do.
Plus I wanted to get ahead of myself so I have things in reserve for bad days and when the snooker starts LOL.
What are you doing today?
Nothing at all to do with Fibromyalgia but feel the need to vent.
I have large Irish hands with sausage fingers.
They get wider the nearer to the bottom you go.
When I married miraculously I got into an R engagement ring.
Now I need at least a V on that finger.
For the last few weeks my hands have been swolen and very sore and I can't wear my rings.
I am now getting lumps on my knuckles as well.
Making a fist hurts and is not always possible.
I still want to be able to wear some jewellery to make me smile but can I?
I am sick to death of looking for large rings and seeing only K-P as an option.
When did the jewellery industry get so damn sizist?
People are so much more body positive these days and still we can only get teeeeeeeeeeny tiiiiiiiiiiiny rings.
I for one am sick of it.
If I had the money I would start a business catering for all needs and sizes.
I am sick of the inference that we should all be stick thin perfect models with piano player fingers.
UGH!
