Monday 29 April 2019

Help me I'm drowning!




I am screaming at the top of my lungs.

I am asking everyone and anyone.

No one wants to help!

What am I supposed to do?

My husband and I moved to his home town in South Yorkshire from North Wales by the sea. Where we had met and married while working at Butlins. We decided to move because there was very little work when Haven took over the camp unless you spoke Welsh. Within a week of arriving here my husband had a full time job and I ran the house.

This to me shouts we are not benefit scrounging scum or shirkers or whatever else the press and tories want to call the sick and disabled. We wanted to work we wanted to make something for ourselves. We wanted to buy our council house and move up the ladder. The week after the papers were signed my husband had an accident at work and broke his back.

Our son and then our daughter were diagnosed as autistic and I think all the stress finally came out in me and I was diagnosed with Fibromyalgia.

My fibro has progressed from my diagnosis in 2003 and now I am bedroom bound in constant pain and haven't left the house in over three years. Over three years ago I asked my doctor for stronger pain killers and he said no. Recently after getting access to my medical records online (which consists of a few blood tests and very little else) I saw a letter the lady at the pain clinic wrote to my GP insinuating I was a junkie looking for a fix as I didn't think counselling would help my pain.

I am stuck in a bedroom 24/7 with no hope of ever getting out of here and of nothing ever changing you can read why here.

Then I saw Carly Barton on the TV and in the paper looking for a cannabis amnesty for people with chronic pain and I was so happy that maybe finally I could do something to ease my pain and maybe just maybe get my life back.

So off I went to her website to sign up and to my dismay the only people who can join are those who have received a prescription from a specialist clinician! So I wrote her a long email explaining my situation and how I am now turning to drink to dull the senses as I can't cope anymore and the reply was
"Hi Jools, so sorry to hear about your troubles with your health. I hope you can find another doctor that is willing to help you. All the best"

So it appears if you already have great doctors helping you she will help you, but if you really need help tough!

I am at my wits end and really not sure how much longer I can cope with all I have to deal with.
On top of all the pain and fatigue depression and desperation I am being hounded by the DWP.

My son was assessed to swap from DLA to PIP he received 2 points, asked for a mandatory reconsideration and got the same answer, went to a tribunal with is Dad as I am too sick and lost his money.

I was assessed whilst sitting in my bed received 2 points, asked for a mandatory reconsideration and got the same answer, filled in the online form for the tribunal which I am too sick to attend so will probably lose my money too.

Have just had the letter from the DWP for my daughter to attend an assessment and to say I am not holding out any hope of her keeping her money is an understatement.

I have been told by citizens advice there are NO ADVOCATES where we live that can help us in any capacity.

So we are losing what we need to live on. 
I am not living at all!
NO ONE WANTS TO HELP.
Welcome to Tory Britain 2019
What am I supposed to do?



2 comments:

  1. Dear Jools, it saddens me to hear all that you have been through and all you are going through - you and your family. The system seems so unfair where you are. When Australia was implementing their new disability scheme there were warnings in the paper saying that we did not want to end up with a system like the UK "middle level of bureaucratic case managers -- placing more reliance on the opinions of the client, carer or family. Funding should be flexible to cater for one-off needs, and reviews should be catered to individuals rather than be time-specific." https://www.theaustralian.com.au/news/health-science/disability-plan-must-avoid-uk-mistakes/news-story/070ac8d1a955ccbd435b7c647e93500f
    I am so sad that you, my friend, are trapped in this mess.

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    1. Bless you honey. As an update I’ve lost my money too, just waiting to hear about my daughter. The assessors are lying about everyone and kicking people off left right and centre. People are starving and committing suicide all over the U.K. its a really scary time. Xxxx

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